Balancing Relationships

 

In our previous article, Caregivers and Relationships, we gave a very broad overview of managing paid caregivers1 and various other relationships. Relationships are more than just managing caregivers and other people in your life. In long-term romantic relationships, particularly, there are many factors involved in creating a healthy and safe emotional space to help the relationship to continue. People with disabilities have long been unfairly characterized as being a burden to society, and this characterization carries over into any relationship where there is an expectation of equality. Even individuals themselves struggle to find their own worth and sense of equality within this relationship dynamic.

Read the entire article on Yahoo! Accessibility.

The New Year

When most people think of New Year’s resolutions, they picture easily made and easily broken promises. I like to think of the New Year as a time for reflection and self-guidance — a time to look back on the year behind us and what we have learned from those experiences, and a time to look forward into the new year to see how we can use those lessons to get closer to our goals.

Most of the GimpGirl regulars know that, for me, the last year has been one filled with a great deal of difficulty. The summer saw a sudden end to my long-term relationship, which sparked an interstate move and an endless cascade of problems with arranging social services and dealing with various other issues, on top of continuing school and my work here at GimpGirl. It has not been easy, to say the least. At times it looked as if I would end up in a group or nursing home on a long-term basis, something I fight very hard to avoid. It has been soul crushing, heartbreaking, and has tested every ounce of my somewhat renown tenacity.

As a disabled disability advocate, I feel it is important to share this experience. Sharing experience is a big part of how our community learns from each other. I often encounter assumptions that advocates don’t experience the same kinds of struggles and barriers that many other people do. We do, and it is just as difficult for us. We also know that what we do for ourselves affects those that come after us.

I have learned so much in the last six months. More than I ever thought possible. I have learned even more about navigating the system, what housing options are available to people with disabilities, what specific terminology to use when being assessed for caregiver funding, federal laws and statutes, and a multitude of other things. What I was reminded of more than anything was to stick by who I am as an individual. I am worthy, and the goals I set for myself are worthy. It was a reminder to not let anyone change me, because who I am is pretty awesome even if not everyone thinks so. It was also a reminder of how vitally important having a community is. Without my GimpGirl family – all of you amazing women who understand what facing these struggles is like – all of this would have been unbearable. When I was tired, these reminders would echo through my mind, keeping me from giving up when everything was telling me to.

As I go forward into the new year, I will take those lessons with me into my own life and in my work with GimpGirl. I am already seeing the light at the end of the tunnel, but I know that in order to fully realize what I want from my own life I will face many obstacles in the months to come. However, having looked back at the previous year, I know that I can face it. I know that the struggle is worth it. I know that I am worth every bit of energy I put into myself and my dreams. I believe in myself, probably more than I ever have after facing all of this.

I look forward to the year ahead. I look forward to working with other volunteers to make GimpGirl an even better community, with more community-created content and outreach. As we begin our 14th year together, I look forward to getting to know all of you even more. I am grateful for every one of you.

– in solidarity… Jennifer Cole

Social vs Medical Model Evolved

Disability activists and advocates have been trying to frame disability and surrounding issues using a social model of disability since at least the 1980s in an effort to distance discourse from the (still) predominant medical model that rules many of our lives. This switch in models was to frame disability in a way that made it clear where many people face barriers and how those barriers can be addressed. However, the vast majority of people have still never heard these terms or understand the implications of these thought frameworks. Of those who have, even within the disability community, there is a sense of division between those who embrace the social model and those who don’t feel it is an accurate description of their reality. So, what are these models and how can we bridge the gap?

Read the entire article on Yahoo! Accessibility.

Accessibility and Online Communities

Universal Design extends the notion of accessibility to include design that is useful to people with and without disabilities. It was introduced by a team whose leader, Ron Mace, is a disabled architect. While the ideal physical world is accessible to everyone; universal design also applies to the Internet and online communities.

“Universal design seeks to encourage attractive, marketable products that are more usable by everyone. It is design for the built environment and consumer products for a very broad definition of user.”

- Ron Mace

Virtual worlds, i.e. Second Life, have made specific efforts to improve accessibility for people with certain kinds of disabilities. For example…

Read the entire article on Yahoo! Accessibility.

SLCC 2010

Come join GimpGirl Community at the Second Life Community Convention in person or online! Katherine Mancuso (SL: Muse Carmona) will be representing GimpGirl Community in the following SLCC 2010 events:

GimpGirl: Weaving a Virtual Support Network for Women With Disabilities
Saturday, 6:30 to 7:30am Pacific – Thoreau
UStream Channel: http://www.ustream.tv/channel/slcc6

GimpGirl’s mission is to connect women with disabilities through social technologies to support each other’s lives. We believe the lessons we have learned about how universal design and accessibility apply to facilitating conversations about healthcare and support across platforms are translatable to other community building, education, and collaboration efforts in Second Life.

Virtual Worlds Standards: Why You Should Care
David Levine (SL: Zha Ewry), Katherine Mancuso (SL: Muse Carmona), Jeanne Spellman (SL: Jeanne Solo)
Sunday, 8:00 to 9:00am Pacific – St. James
UStream Channel: http://www.ustream.tv/channel/slcc2/

As virtual worlds evolve, standards will be part of the dialogue shaping the growth of their technical architectures and social ecosystems. Topics will include: standards for Second Life-Like worlds, compatibility with existing Internet technologies, accessibility for persons with disabilities, and standards for meshes and graphics.

Utilizing Virtual Worlds for Real Life Good
Joyce Bettencourt (SL: Rhiannon Chatnoir), Henry Allen (SL: Jaywick Forcella), Kathey Fatica (SL: Katydid Something), Katherine Mancuso (SL: Muse Carmona), Janyth Ussery (SL: Saxet Uralia)
Sunday, 11:30am to 12:30pm Pacific – St. James
UStream Channel: http://www.ustream.tv/channel/slcc2/

Can a virtual world manifest real life good? This presentation will be an overview and panel discussion of best practices and learned experiences of five people working formally and informally on social good, nonprofit and philanthropic projects within Second Life. Topics such as using virtual simulation for support and awareness, fundraising, community outreach, and event planning along with the opportunity to askquestions, and pick the collective brains of the panelists.

All events can be viewed from Second Life at the SLCC sim (SLurl: http://maps.secondlife.com/secondlife/SLCC%201/233/24/25 ) in the room listed, or on the Ustream address in each event listing above!

GimpGirl Community at 2009 IEEE Accessing the Future Conference in Boston

 

We pleased to share that GimpGirl Community Liaison Katherine Mancuso will be presenting on our behalf at the 2009 IEEE Accessing the Future Conference, which takes place in Boston, MA from July 20-21.

You can also read the PDF of the abstract. Are you attending IEEE? Say hello! What are your thoughts on accessible community in virtual worlds? Let us know…